Be an active participant in your health care. Ask questions about your diagnosis and treatment plan, including what side effects to expect.
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Because neurofibromatosis is rare, most physicians have little experience treating it. MD Anderson has one of the largest comprehensive neurofibromatosis programs in the nation. This can make a difference in you or your child's care and quality of life.
As part of a comprehensive cancer center, our neurofibromatosis program can offer the full range of services neurofibromatosis patients may need. We partner with oncologists and surgeons, including teams in neuro-oncology and sarcoma care, to offer the most up-to-date therapies and procedures. We also work with reconstructive surgeons to remove skin tumors and tumors around the eye. And we provide a comprehensive academic/school assessment and intervention program for children with NF and learning disabilities - the first such program in the world.
Understanding a disease is the first step toward finding the right care. Get the facts about neurofibromatosis, including the different types, how it starts and who’s at risk.
Did You Know?
About 100,000 Americans have some type of neurofibromatosis.
BY Mary Brolley
To those he meets, Reggie Bibbs has but one request. Just ask.
A Houston-based, internationally known activist, Bibbs has neurofibromatosis type 1 (NF 1), a genetic disorder that ranges in severity from almost imperceptible to major.
As such disorders go, NF 1 is common, occurring in about 1 in 3,000
births. The two other forms of NF -- neurofibromatosis 2 and
schwannomatosis -- are much more rare.