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View Clinical TrialsAt MD Anderson we offer customized neurofibromatosis care aimed to help patients live full, active lives. We utilize the most advanced treatments and techniques that offer the best possible outcomes for both pediatric and adult patients.
At MD Anderson we offer customized neurofibromatosis care aimed to help patients live full, active lives. We utilize the most advanced treatments and techniques that offer the best possible outcomes for both pediatric and adult patients.
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Caregiver
Comprehensive care
Because neurofibromatosis is rare, most physicians have little experience treating it. MD Anderson has one of the largest comprehensive neurofibromatosis programs in the nation. This can make a difference in you or your child's care and quality of life.
As part of a comprehensive cancer center, our neurofibromatosis program can offer the full range of services neurofibromatosis patients may need. We partner with oncologists and surgeons, including teams in neuro-oncology and sarcoma care, to offer the most up-to-date therapies and procedures. We also work with reconstructive surgeons to remove skin tumors and tumors around the eye. And we provide a comprehensive academic/school assessment and intervention program for children with NF and learning disabilities - the first such program in the world.
Treatment at MD Anderson
Facts
Understanding a disease is the first step toward finding the right care. Get the facts about neurofibromatosis, including the different types, how it starts and who’s at risk.
Did You Know?
About 100,000 Americans have some type of neurofibromatosis.
Symptoms
Most cancers have the same symptoms as other, less serious conditions. Still, it’s important to know what to look for. Learn more about neurofibromatosis symptoms.
Diagnosis
Blood tests, imaging exams and even surgical procedures are used to check for cancer. Learn what methods doctors use to diagnose neurofibromatosis.
Treatment
Common treatments for neurofibromatosis include radiation, chemotherapy and surgery. Doctors select a treatment plan based on your child's exact situation.
Clinical Trials
MD Anderson patients have access to clinical trials offering
promising new treatments that cannot be
found anywhere
else.
Knowledge Center
Find the latest news and information about neurofibromatosis in our
Knowledge Center, including blog posts, articles, videos, news
releases and more.
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Prevention & Screening
Many cancers can be prevented with lifestyle changes and regular
screening.
Counseling
MD Anderson has licensed social workers to help patients and their loved ones cope with cancer.
BY Mary Brolley
To those he meets, Reggie Bibbs has but one request. Just ask.
A Houston-based, internationally known activist, Bibbs has
neurofibromatosis type 1 (NF 1), a genetic disorder that ranges in
severity from almost imperceptible to major.
As such disorders go, NF 1 is common, occurring in about 1 in 3,000
births. The two other forms of NF -- neurofibromatosis 2 and
schwannomatosis -- are much more rare.
Bibbs...