Awareness & Education in MPN

Besides pursuing with the clinical development of new treatments, an important goal of the Hanns A. Pielenz Clinical Research Center for Myeloproliferative Neoplasms is to educate physicians, patients and their families and the community about novel, promising MPN medications and the latest clinical research findings.

We periodically publish the patient-centered newsletter MPN Focus  (issues are listed in the panel below) where we present all the active clinical trials evaluating emerging MPN medications at MD Anderson and highlight the most important findings from MPN clinical research studies.  These studies are presented at the most important national and international hematology/oncology conferences, such as the American Society of Hematology, American Society for Clinical Oncology, and the European Hematology Association. 

Furthermore, we frequently engage in educational symposia and conferences for physicians and patients; for example, from 2013 to 2017, we organized and hosted five annual MPN Patient Meetings at MD Anderson, in collaboration with the patient support groups (photo to the left, 2013 Meeting). Other educational activities that the MPN Team engages in include video presentations on novel MPN treatments at online forums, such as Patient Power, PV Reporter, and others; and invited presentations at the annual meetings of the American Society of  Hematology (ASH), the European Hematology Association (EHA), the Society of Hematologic Oncology (SOHO), the Texas MPN Workshop, and many others.

For South Texas, Houston contact

CharlieNielsen@aol.com

For North Texas, Dallas/Fort Worth contact

andrea926@sbcglobal.net