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von Hippel Lindau Disease Diagnosis

MD Anderson offers the most advanced diagnostic methods for von Hippel Lindau disease, including precise imaging techniques. In addition, we can provide comprehensive, expert genetic testing and counseling.

VHL can be challenging to diagnose. It often affects more than one part of the body, and the symptoms are often vague. However, finding von Hippel Lindau disease early may mean you have a higher chance for successful treatment and better quality of life. That’s why it’s important to be tested periodically if VHL runs in your family. Also, it’s a good idea for everyone in your family to have genetic testing.

If you have VHL and develop eye problems or signs of a neurological problem, such as headaches, your doctor may recommend a thorough eye exam or MRI or CT scans of the brain.

Getting a Second Opinion at MD Anderson

The experts at MD Anderson are highly experienced in diagnosing von Hippel Lindau disease and its associated conditions. We welcome the opportunity to provide second opinions.

von Hippel Lindau disease is a genetic condition that runs in families. If you have von Hippel Lindau disease, or if you have a family history of the disease, we recommend genetic counseling. Visit our genetic testing page to learn more.

Clinical Trials

MD Anderson patients have access to clinical trials
offering promising new treatments that cannot be found anywhere else.

Knowledge Center

Find the latest news and information about von Hippel Lindau disease in our Knowledge Center, including blog posts, articles, videos, news releases and more.