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KIWI: Kids Inquire, We Inform

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A cancer diagnosis can create a variety of questions for patients who have children. The first question many parents ask is, "How do I talk to my child about cancer?"

Whether you're wondering how to tell your child about your diagnosis, treatment, progression or recurrence, there are quite a few things to consider before beginning these important discussions.

To start, consider your child's age and developmental stage. Some children are too young to verbalize questions and others may be too afraid to ask. Also, what does your child already know about cancer?

What is the best approach?

It's common for parents to protect their children by withholding information that may be upsetting, but research shows the following:

  • A parent's cancer diagnosis affects a child whether or not the child is informed of the condition.
  • Anxiety levels are higher in children who aren't informed about their parent's condition, compared to children where the issue is discussed.
  • For parents of teenagers, an important aspect of coping is ongoing communication between the teens and their parents during the course of the illness.

So, what does this research mean to parents? Simply put, it means that honest, age-appropriate communication is best.

How do I talk to my child about cancer?

First, it's crucial to say the word "cancer." This is essential so the child will not associate the parent's diagnosis with another illness children can catch, like the flu or a cold. The following are common questions many children have, and they're important points to consider while talking with your child:

  • Can I catch cancer?
  • How does cancer happen?
  • Is it my fault my mom or dad got cancer?
  • Will my mom or dad die from cancer?

Remember that children may not ask these outright, but many will be wondering about them. Because children pick up on social cues, they may sometimes create scenarios in their heads far worse than reality when not given honest communication about what's happening.

Honest and age-appropriate communication with children models the behavior that it's OK to ask and talk about cancer.

What behaviors should I watch for?

If your child has exhibited behavior changes since a cancer diagnosis in the family, it may be a sign they're anxious but not talking about it. Some behavior changes to watch for include:

  • Regression, such as reverting back to thumb-sucking, bed wetting, etc.
  • Depression or excessive sadness
  • Decline in grades
  • Anger or outbursts
  • Physical complaints, such as frequent headaches or stomach aches
  • Withdrawal

Many of these behaviors are common and age-appropriate, but you might want to seek additional support if the changes are associated with the timing of the diagnosis and are unusual reactions for your child. Also, be sure to inform your child's teachers and school counselor about your cancer, as they can help watch for behavior changes and provide support when needed.

Where can I get more support?

Help is available if you'd like more information on answering questions and helping your children cope. The Department of Social Work created the KIWI program: Kids Inquire - We Inform.

The KIWI program has three components:

Kid Kits

Backpacks containing information and tools for children and parents to assist in learning about cancer and healthy ways to cope.

CLIMB®

Children’s Lives Include Moments of Bravery, a support program for children and teens coping with a parent's cancer. The program provides support groups for children, teens and parents.

Kid to Kid: Learning to Cope When Your Parent Has Cancer

A video for children which explains cancer, treatments, and common questions kids may have when a parent has cancer.

For more information on KIWI, contact your social work counselor or the Department of Social Work at (713) 792-6195.

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© 2014 The University of Texas MD Anderson Cancer Center