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Neurofibromatosis Symptoms

Neurofibromatosis Type 1

  • Six or more brown spots (cafe-au-lait) on the skin measuring more than 5 millimeters in children and more than 15 millimeters in adolescents
  • Two or more neurofibromas (slow-growing tumors of the nervous system) or one plexiform neurofibroma (peripheral nerve tumor)
  • Freckling in armpit or groin areas
  • Optic glioma (tumor affecting the optic nerves or where the nerves cross)
  • Two or more Lisch nodules (growth on the iris of the eye)
  • Skeletal or spinal abnormalities such as scoliosis or thinning of the shin bone
  • Family history of NF1

Neurofibromatosis Type 2

NF2 is distinguished by tumors that grow on the hearing nerves, usually causing partial or complete deafness.

If your child has been diagnosed with neurofibromatosis, we’re here to help. Call 1-877-632-6789 to make an appointment or request an appointment online.

Why Choose MD Anderson?

  • Access to novel therapies and state-of-the-art technologies before most children’s hospitals
  • We see more types of cancer than any other children’s hospital in Texas
  • Family-centered care that actively involves parents in their child’s treatment
  • A strong cancer research program focused on developing new therapies for pediatric patients
  • Comprehensive support services such as an accredited school program, creative arts, child life and career counseling
  • An Adolescent and Young Adult Program that specializes in the unique medical and psychological needs of patients aged 15-25

Neurofibromatosis Knowledge Center

Treatment at MD Anderson

Childhood neurofibromatosis is treated in our:

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