Neurofibromatosis Symptoms
Neurofibromatosis Type 1
- Six or more brown spots (cafe-au-lait) on the skin measuring more than 5 millimeters in children and more than 15 millimeters in adolescents
- Two or more neurofibromas (slow-growing tumors of the nervous system) or one plexiform neurofibroma (peripheral nerve tumor)
- Freckling in armpit or groin areas
- Optic glioma (tumor affecting the optic nerves or where the nerves cross)
- Two or more Lisch nodules (growth on the iris of the eye)
- Skeletal or spinal abnormalities such as scoliosis or thinning of the shin bone
- Family history of NF1
Neurofibromatosis Type 2
NF2 is distinguished by tumors that grow on the hearing nerves, usually causing partial or complete deafness.
If your child has been diagnosed with neurofibromatosis, we’re here to help. Call 1-877-MDA-6789 to make an appointment or request an appointment online.
Why Choose MD Anderson?
- The Children’s Cancer Hospital is within the No. 1 cancer center in America
- Access to novel therapies and state-of-the-art technologies before most children’s hospitals
- We see more types of cancer than any other children’s hospital in Texas
- Family-centered care that actively involves parents in their child’s treatment
- A strong cancer research program focused on developing new therapies for pediatric patients
- Comprehensive support services such as an accredited school program, creative arts, child life and career counseling
- An Adolescent and Young Adult Program that specializes in the unique medical and psychological needs of patients aged 15-25
Neurofibromatosis Knowledge Center
Treatment at MD Anderson
Childhood neurofibromatosis is treated in our:

