BY Shelby Brimley

When Charlie was eight weeks old, I noticed his legs had become limp. We took him to the ER and discovered he had a large tumor compressing his spinal cord causing lower body paralysis.

Charlie had emergency surgery two days later to remove the tumor, with hopes of saving his leg function. A biopsy revealed the diagnosis: primitive myxoid mesenchymal tumor of infancy (PMMTI). This is an incredibly rare sarcoma that affects infants...

Charlie Brimley with his parents, Shelby and Scott Brimley, at the MD Anderson Proton Therapy Center on Oct. 4, 2019..