Breast cancer survivor: Why I participated in three clinical trials
I am the only person in my family who has survived cancer. My mother died of leukemia when I was 29, my father and stepfather died of stomach and jaw cancer (respectively) when I was 31, my father-in-law died of lung cancer when I was 35, and my sister-in-law died of lung cancer when I was 44.
So when I was diagnosed with stage IIA invasive ductal carcinoma — a type of breast cancer — in June 2015, telling my children was probably the worst part, because they’d never known a success story.
Recognizing breast cancer symptoms
I started experiencing breast cancer symptoms in the fall of 2014, though I didn’t recognize them at the time. My husband had bought me a backpack for an upcoming trip, and it kept causing me discomfort under my right arm. The bag was made of very heavy saddle leather, so I didn’t give it much thought. I just figured it needed breaking in.
Then I went to New York City, and the backpack was the only bag I took with me. After using it all week, it didn’t seem unusual that I was feeling pain under that same arm. But even after we got back, the pain didn’t go away.
By February 2015, I was starting to feel something else under that arm, too, but it wasn’t really a lump, just a slight thickening of the tissue. I finally went to the doctor in June. That’s when I learned I had breast cancer.
And even though I only had cancer in my right breast, I opted for a double mastectomy with no reconstructive surgery. I like symmetry, and I figured no one would look twice at a flat-chested woman, but they sure would stare at a one-breasted or a lopsided woman. Plus, if I kept one breast, I’d have to wear a prosthesis all the time just to look normal, and that seemed like too much trouble.
The day before my double mastectomy, I had a biopsy of the tumor. It showed no cancer, just scar tissue. The chemo had killed everything. My surgeon, Sarah DeSnyder, M.D., suggested we just do a lumpectomy instead, but I don’t have a good track record with things like that, so I said no.
A trio of breast cancer clinical trials
I did, however, say “yes” to clinical trials at MD Anderson. In fact, I participated in three. One studied the best way to predict arm swelling in breast cancer patients. Another compared a new type of imaging scan with an ultrasound to see which more clearly showed that breast cancer was responding to chemotherapy. A third compared what was found during a biopsy with what was found during surgery to see if future breast cancer patients could avoid surgery.
I joined all of these clinical trials because if I don’t help, the next person might not make it. And what if that next person is my daughter? Doctors can’t learn if people say no, so I did it.
The worst thing I can say about the clinical trials was that I had to sit still for quite some time during one scan. But that was only an extra hour, so it was no big deal.
Celebrating ‘no evidence of disease’
Today, I show no evidence of disease, and I haven’t since November 2015. I credit Dr. Karuturi and the rest of my care team for that.
When I was first diagnosed with cancer, I was absolutely terrified, but MD Anderson has been incredible. It really was the right move to come here, and I will never regret it.