What should I do before my appointment?
If you have been referred to MD Anderson for a genetic counseling, it is important you fill out our online genetic risk assessment questionnaire before your appointment. The form is private, secure and provides important information that will help between you and the genetic counselor. Your answers will allow the genetic counselor to accurately evaluate your family history.
You can now complete the questionnaire by logging onto mychart.mdanderson.org. You will be prompted to enter your username/MRN (Medical Record Number) in the MRN box. Enter your password in Password box. Click the "Login" button. Locate and click the link "Genetic Risk Assessment Questionnaire" under Notices. Click the NEXT button to start the questionnaire. If the link does not appear or if you experience technical difficulties, please contact Clinical Cancer Genetics at 713-745-7391.
If you do not complete the online questionnaire, you will be asked to complete a paper-based version of the Genetic Risk Assessment Questionnaire in English or Spanish (pdf) prior to your first appointment.
How do I find the information to complete the Genetic Risk Assessment Questionnaire?
Please give yourself time to complete the online questionnaire. You may find it helpful to talk to your family members to find out as much medical information as you can about your family history.
To speed up the process of completing the online questionnaire, it may be helpful to gather information (current age or age at death, and general health history) on your family members. Specifically, we will ask about your immediate family members, including your parents, siblings and children. We also want to know about your extended family members, including your aunts, uncles, cousins and grandparents on each side of your family. It may also be helpful to locate medical records from family members who had cancer. These records include pathology reports of tumors, surgical reports and hospital discharge summaries regarding their cancer course.
For family members who have had cancer, you will need to obtain the following information:
- Type of cancer (e.g., breast, colon, ovarian, etc.)
- Age at which the cancer was diagnosed
- Current age. If deceased, age and cause of death
- For breast cancer cases, whether the cancer was unilateral (e.g., one breast) or bilateral (e.g., both breasts)
- Whether the family member with cancer developed a second cancer. If yes, it is important to try to clarify whether the second cancer was a metastasis (spread from the first cancer), or a new primary cancer (new separate cancer)
Providing the correct information about the types of cancer in your family is very important in assessing cancer risk. We understand you may be unable to collect all the information about your family's cancer history. Genetic counseling will be based on the information that you provide.
Learn more about gathering information for a cancer-focused family history.
What do I need to bring to my first appointment?
Once you have completed the Genetic Risk Assessment questionnaire online, you are ready for your appointment. You can get to this questionnaire through your my.mdanderson.org account. It may also be helpful to bring copies of medical records (including genetic test results, pathology reports, etc.) if you have them. If you do not complete the online questionnaire, you will need to complete and bring the paper version in English or Spanish (pdf) to your first genetic counseling appointment.