Data Management Support
The HPAR staff provides data management support for the collection and analysis of family history information, specimen tracking, clinical and laboratory tracking information and the development of clinical and risk assessment tools for the risk breast/ovarian and colorectal cancer clinics. The HPAR processes, automates, and edits the clinical, epidemiologic and biologic data derived from genetic testing protocols. The staff also provides Core consultative support and guidance with a high level of security in the development of databases for projects. Pedigree drawing programs are available that include Cyrillic, Kindred, FTREE, Peddraw and Progeny.
The Section of Computational Genetic Epidemiology in the Department of Epidemiology assists many investigators in the analysis of pedigree data.
- Assistance is provided for guidance in the development of data collection tools for family history information
- Assistance is provided in the development of protocols for data queries from the database and analyzing data for developing novel methods
- Extensive resources are available for consultative assistance for the analysis of pedigree data in the Section of Informatics in Epidemiology
- Specialized programs for analysis of familial data include LINKAGE, Pedigree Analysis Package and Statistical Analysis for Genetic Epidemiology and Genetic Analysis Package
The HPAR staff and Dr. Chris Amos are available to assist investigators with protocol development. The staff can assist with establishing plans for patient and information flow and developing institutional protocols. The staff has worked extensively with the MD Anderson IS staff to develop an online process for registering new participants to the study and capturing data from the patients through a web interface.