Awareness and Education
The successful Clinical Research Center for MPN requires rapid dissemination of information about MPN, new research findings, and available treatments to the largest number of physicians, patients and their families. In 1996, the Leukemia Department at MD Anderson established a Leukemia Website with the primary objectives of disseminating information about leukemia, announcing new treatment strategies and providing contact information to patients and physicians.
We have established collaborations with the MPN Research Foundation and Chronic MPN Educational Foundation, two large national patient support groups. We also regularly publish articles about available therapies in the Foundations’ newsletters. In addition to sharing valuable information, these activities also will increase accrual of patients to our clinical trials to speed our efforts to find an effective treatment and cure for MPN.
In March of 2006, Dr. Verstovsek organized an international meeting of the International Working Group for Myelofibrosis Research and Treatment (IWG-MRT) at MD Anderson, with a goal of defining treatment response criteria for this type of MPN (published in May 2006). A second IWG-MRT meeting was held at MD Anderson in November 2006, with a task of standardizing nomenclature and terminology for myelofibrosis (published in January 2007). A third IWG-MRT meeting was organized at MD Anderson in May 2007, with a task of defining uniform diagnostic criteria for PMF (published in August 2007). Currently, the IWG-MRT meeting, which brings together experts in the field of MPN research from around the world, is held annually in Florence, Italy.