Awareness and Education
One of the goals of the Hanns A. Pielenz Clinical Research Center for Myeloproliferative Neoplasia (HAP-CRC-MPN) is to educate physicians, patients and their families about new research findings and available treatments for myeloproliferative neoplasms (MPN).
As part of our mission to educate, we have established collaborations with national patient support groups, including the MPN Research Foundation, MPN Education Foundation, MPN Advocacy and Education International, The Mastocyctosis Society, and the American Partnership for Eosinophilic Disorders. We also regularly publish articles about available therapies in the Foundations’ newsletters. In addition, Dr. Verstovsek is frequently and an invited speaker at national and international scientific meetings, including annual meetings of the American Society of Hematology, American Society for Clinical Oncology, and the European Hematology Association. Dr. Verstovsek is a also a frequent speaker at patient educational meetings and symposia held in various cities across the United States.
In an effort to expand our patient education initiatives, we have created a periodic newsletter for patients and their family members. MPN Focus is a semi-annual newsletter that provides the MPN community with information on current research and treatments, advice and support for patients, and updates from the HAP-CRC-MPN.
On November 23, 2013, MD Anderson and Patient Power hosted an educational forum for MPN patients and their families in Houston, TX. The event featured a panel of experts in the MPN field who shared the latest in MPN research and treatment and strategies for coping with disease symptoms and treatment side effects. Several patient advocates also joined the discussion to share their experience and advice. The day-long forum was such a success that Patient Power and MD Anderson will host another patient meeting on November 1, 2014.